So its been almost 5 months since we laid eyes on our second daughter!
What a whirlwind its been. Sometimes I think back on ALL that has happened in the last months in awe of the heavenly fathers handiwork in our girl.
3 years ago when I started this blog to document our journey of adoption I set out to be as transparent as I could and would only write when I felt the prompting from the Lord to share what was on my heart. You should know being an adoptive parent often comes with a little bit of "internal turmoil" about how much to share, how much of our child's story to we let out in the world. So I am sharing all this because I have always said I felt like Momo's story is bigger than us. Many prayed her into our family. We gladly share her and her sweet joy with those around us.
When we set out to adopt we never knew what the Lord had in store for us.
We never even thought we would have 4 kids! One having medical needs, and one having medical needs and special needs.
That's the Lord for ya- HE is full of surprises! And we have learned HE really knows best.
So when it came to Brighton Mae being knit into our family it was a no brainer. We knew better than to say no, we had just seen what a "yes" to HIM brought- our sweet boy Regis!
We knew about our sweet girls medical needs before we said yes. We knew saying YES to her was saying yes to the unknown and the hard, BUT we also knew saying YES was in line with what the Lord wanted for our family. It didn't matter what the future held we knew the Lord would provide for our sweet girl to come home to her family.
So here we are months later, numerous doctors visits, 10 different specialist, physical therapist and Occupational therapist have all joined what we have been calling "TEAM MOMO"
We have just gotten maybe half way in figuring out all our sweet girl is and has been dealing with medically all her life. Its too many doctor visits, too many test for one girl to have to endure. My heart hurts for her. Some doctors offices I leave encouraged and positive, but then there are some that I come out of having held the tears in again until I can get in the car and I can barely catch my breath from the weight of what I was just told is too much to bear. It's too much for my sweet daughter to bear. BUT you know what? she does! She rocks each appointment, each test, each hour of waiting in waiting rooms for hours so beautifully. I am learning so much from HER strength and the complete JOY in which she handles anything that comes her way.
I have to add before I go on that we have been seeing HUGE progress in our girl. She goes to school every day and has the most wonderful teachers who have become a part of our "village" her OT and PT therapist are encouraged weekly at the progress being made. WE have seen her make great strides here at home and she is the most Joyous child I think I have ever met. It's so much fun being her momma.
So why am I spilling this all out?
Bottom line- She needs prayer. WE KNOW the power of prayer and so we
are begging for it now.
We have some big test coming up, needed test to help us better understand
some are physical- her right arm and hand are still a big mystery to us. She has a big appointment with a hand and arm specialist in Atlanta in November. Not that it bothers her that she can't use her hand. Girl can do just about anything anyone else can do with just one hand. We just want to make sure her left arm wasn't broken at one time and healed wrong, and blood flow/ circulation is at a healthy standpoint for her.
some are medical- a few genetics test are being ordered , as well as an Xray in the next week to look deeper into her difficulties in breathing. We don't know if this is due to her complex heart condition or the fact she had a tracheostomy during her first heart surgery and has scar tissue remaining making it difficult for her to breathe.
Big eye appointment in November for her eye- looks like an eye surgery is likely but we go back one more time to make sure this is the right path for our girl.
ALL this in addition to waiting to see when she will need her second heart surgery.
These are our concerns for our girl right now. I wanted to be specific in our request so those who pray for our daughter could be specific in their prayers.
What we are learning is the more we learn about her the more unknowns we find that lead us to yet another specialist, another doctor, another test.
Even with all the UNKNOWNS there is one thing we KNOW.
OUR beautiful daughter is loved, she is fearfully and wonderfully made and our GOD loves her even more than us!
HE knew what he was doing when he weaved her into our family. HE is the one we pull strength from when we are weary and tired.
Thank you so very much for praying for our girl, and thank you for joining